NORTHFIELD — Jen Freed knows what she wants.
But at the same time, what she wants is still a mystery.
In June, Freed plans to ask Atlanta doctors to consider giving her daughter, Amber, drugs she believes could allow the third grader to function more normally. But what those drugs are and what they might do for Amber, Freed doesn’t know.
Read the full story here @ northfieldnews.com
Finally got round to adding the first video story. This one is from Kathy Rivers and describes the difficult time she had in getting a diagnosis of any kind for her children. You can find it under the ‘Stories’ link to the left or directly here
Hopefully this is the first of several videos, this one is located on Youtube but some may be hosted directly here. With a bit of luck there will be personal stories on these pages in other formats to.
Just added, the video story of Bethany Lewallen and her life dealing with the mitochondrial disease MELAS. You can find it under the ‘Stories’ link to the left or directly [here]